September 26, 2016 Leave a comment
About a month ago I had an attack while crossing the streets, I had to stop right there in the middle of oncoming traffic. It’s bad. You cannot move. You are not afraid of anything else, as the headache becomes everything. I almost did not come today, because I had a crisis last night, but my mother prayed for me all night. Recently the headaches have been frequent and intense, since I have no way of procuring treatment and medication without medical cover. I require approximately Kshs 10,000/ every time I visit the doctor to cover consultation and medication. My current source of income cannot support that.
I first had a seizure in 2003 while in primary school in Mtitu Wandei. I thank God that my father had a medical cover for us, so I was treated at either Pandya or Aga Khan Mombasa, I cannot really recall which. My mother would ensure that I had my medication and things remained relatively stable. When I joined High School, I would have a seizure maybe once or twice annually. However, things went terribly wrong when my O-Level results were released. I had failed. I was devastated and my father was very angry and disappointed. I am my parents’ first female child and they naturally want to see me doing well. My results had found me recovering from an appendicitis surgery. My mother suggested I go back to school to try again to better my results. I was admitted, this time at a school in Machakos, in form three with a fresh surgical wound. Subsequently, I spent approximately one and a half of those two additional years in high school, away being attended to medically in Mombasa. My final exams also found me out and I was brought in from hospital to do my examinations.
I failed again. Dad was livid. My medical alone had cost them approximately 5 million in my High School days. I attempted suicide by taking all my Migraine medication. I slipped into a comma that lasted a week. I was diagnosed as being in Psychological trauma, stress. My father and I went through a week of counselling at Mombasa Hospital. He mostly avoided me before and after this time, addressing me through my mother.
My mum suggested that I take a certificate course in IT. I joined the Kenya Polytechnic and moved to Nairobi to live with my Aunt in Kariobangi. I would sometimes faint in the house while with her. After my certificate course, which I now passed, my parents took me to Catholic University of East Africa to pursue a Diploma in IT. My dad was much friendlier. My self-esteem which had been really low, was boosted by his approval and my marks. During the six months that I was at the University, I only sought medical attention twice, for unrelated conditions. I did very well in my examinations.
I needed to go in for an evaluation at Aga Khan Hospital in Parklands. Up till this time, I had not had a particular doctor I was seeing. It was here that I met Dr. Sylvia Mbugua. It was she that finally diagnosed me with Migraines. She recommended an MRI and noticed the number of seizures that I had experienced. She also noted my mental distress. She managed me well. She recommended a tripartite medication that took into consideration and cancelled out the negative side effects, including possible barrenness, that could have resulted with me just taking one form of medication. She also warned me against taking Betapin which for me had the effects of making me high, in the way alcohol would and another drug Rizatriptan that induced suicidal thoughts. She recommended lifestyle changes in terms of diet and exercise which included drinking a lot of water. I could not drink especially wine, and not smoke. Manipulation of my hair into various styles affects me so I keep it short. Since I am no longer a student, and my current employer is new and does not offer medical cover I have been without medication between April and September. I now live alone with my sister in Nairobi, and enjoy my work. I hope that I can be able to go back to school, mainly so I can again have access to my father’s medical insurance which covers me as long as I am a student. I also pray that I can find Dr. Sylvia again so that she can continue to walk with me through this. She left Aga Khan hospital. I now mostly try to manage the Migraine attacks through my lifestyle.
photos and words by: NaMeD Afrika Studios
First published in The Sunday Standard’s Sunday Magazine – September 25, 2016