Keratoconus: Esther Thairu’s Story

As told to Vip Ogola by Esther, her father Stephen Thairu and their good Samaritan Mr. Kamal Sanghani

Stephen Thairu, Esther Thairu with Kamal Sanghani.JPG

Esther: I was young, 2 years old. I had eye trouble and started going to hospital for eye drops. I could see maybe, 30 centimeters and my eyes would pain. The doctors told me it was treatable. It reached a point where I was told I would go in for an operation. I was not afraid even when I saw the razors. I thought it would be painful but it wasn’t. I was anaesthetized and I woke up seeing better. I was in hospital for four days, three of those with my eyes bandaged.

Stephen: Esther was born in Loitokitok. She started having problems with her eyes at the age of two years. She would wake up and find her eyes clogged shut with pus. This happened annually between April and August and we suspected it had something to do with the cold weather. We took her to the district hospital there and she was told she had allergies that would resolve themselves by the time she was eight years old. She was given medication for this.

Esther Thairu.JPGEsther: I do very well in school. I am now 13 years old, and apart from academics, I play football.

Stephen: We moved to Githurai and Esther joined Mercies Academy where she is currently in Standard 6, having dropped back a year due to her medical challenges. Since she was a bright student she caught the attention of her teachers. Teacher Teresia noticed her problems with her eyes and advised us to change to Lions Hospital in Loresho. In the initial year of her treatment, they kept changing drugs. Her right eye was in terrible shape and needed urgent surgery. The left one was also in bad shape. The cost of surgery would be Kshs 350,000/ and they were not taking NHIF. I was confused. I was advised to take her to KNH due to the more manageable costs. On examining her, they concluded that her eyes were badly off. They only perform surgeries once as year so they referred her back to Lions for more urgent attention. We found that the costs there would be the same. I talked to my employer who suggested that we sell my father’s land to offset the costs. She talked to Mr. Kamal Sanghani of the Rotary club about my case and they referred us to Dr. S.P. Amin. We had to wait until he was available.

Kamal: Dr. Amin is in the Board of Lions. He was my contact. I would talk to him and then talk to Stephen. The doctors of Lions are good friends of mine. My family agreed that we would sponsor Esther. We did not know her then, and we have since sponsored three others.  One of the Rotarians told me about her. It took time but Stephen was both patient and persistent keeping me on my toes. Initially it was difficult to get a Cornea. We did not loose home. My mother insisted pushed me from the home front. Since we were working on a tight budget, we agreed that she goes to Lions four or five times. She is a bright student so we wanted to see her excel. There were so many issues and at one point I almost lost my temper with the hospital. Finally we received a Cornea for her from India.

Stephen: They started with her right eye. Then after two months they did Cross linking. She was in a private ward at the hospital and was the only child admitted there at that time.

Esther: I did not go to school. I was told not to by the doctor as it was possible to play a bad game and hurt my eyes. I also needed to avoid dust. I stayed home with Mum and really missed Shule.

Stephen: We had to go to hospital every Saturday after for check-up as she was on medication.

Esther: They would change my specks, I think twice between the first and second operations.

Stephen: They needed to do this to adapt to her strengthening eyesight.

Esther: After I did my first operation, Mr. Francis Mwangi my teacher at my school, Mercies School in Guthurai 44, put me to sit in front of the class. He then moved me to the back of the class to see if I had improved after two week. I had. Fellow students were also supportive in helping me catch up with them, especially Peter Mutuku. I am in Standard 6.

Stephen: She is supposed to be in standard 7 but she lost a lot of time that year and was not able to do her exams.

Esther: My grades are good. I get 350+. At the cross linking the doctors told me that I would go through pain for the night. I stayed indoors for three days with Mum. I am the first of three children and the only daughter of my parents. My mother sells vegetables and my father digs for a living. They gave me eye-drops to put after every two hours.  I was told I could go to school after a week. This was in March 2015. Since that time I have only had my specs changed once. I am in no pain and I can see relatively well.

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